Adventures in Autism

Valerie Rice | May 16, 2021

My retrospect

Once upon a time the other day I realized that having chronic illness and being Neurodivergent at the same time can be a bit befuddling for the outside observer. Do you wanna hear a story? Because you are about to! Okay, so, this one time, a few days ago…..

WHEN THE KID CALLS 911

To be fair, he had good reason. Unfortunately for me, I was then tasked with explaining to a crowd of strangers (nay, MALE strangers) what the hell was going on with me. As you might imagine, this is not easy at the best of times. Did I have a well scripted, easy to understand checklist prepared, as I would for a normal conversation? No. I did not have the time to prepare a statement for every potential question so that I would sound like a normal person. Oops. One paramedic asked me how long “this” ( wtf do you mean, bro?) had been going on. Here is a rough outline of the conversation:

P: About how long?

ME: What?

P: How long has this been happening?

M: Time isn’t real. The only universally applicable concept of time is “now,” it is happening now, and then, and later as well.

P:what?

M: I’m not crazy, this is physics

P: So….today?

M: What about today?

You get the idea. It happened again in the ER and the doctor suggested I talk to their psychiatrist (I did not).

IN THE EMERGENCY ROOM

This is a place where it gets even more complicated. Not only am I so sick that I need immediate attention but I can’t think straight and am alone. For those of us with sensory processing issues, this is pure hell. There are people, sounds, smells, conversations, and sensations EVERYWHERE outside as well as inside and we need it to stop. This includes the being bombarded with questions, repetitive questions at that, and it makes pain sensations worse. Describing those sensations is even worse. This is partly because the language is insufficient for the sensation (YEAH, I CHECKED) and the people around us are unable to sit still long enough to listen. They write down the first thing we say and take off, like the rest of the words I am using don’t count or something. Again, this is super frustrating. I know they are busy. I do. But my communication is limited when speaking in a personal crisis, so hang with me for a sec, okay?

Photo by Juan Pablo Serrano Arenas on Pexels.com

WHEN YOU GIVE UP

Okay, I didn’t die, and I probably won’t. This is where the communication failure comes into play. For some reason, they latch onto a symptom and try to deal with it. Not why I am here, but cool, thanks?  In this case, the migraine. The one I have had for 2 days because my injections are due this week. So the doctor does his standard treatment that never works while I cry about the chest pain and hope someone notices the serious fuckery with my heartbeat that matches the waves of pain and breathing difficulty I am trying to describe. Spoilers: They usually don’t. When the doctor comes back and asks about my head, I of course answer because….he asked? And sometimes I lie and tell him it was very helpful, thank you very much. It wasn’t, but it seemed super important to him for some reason. I may (or may not) get my cardiac issues addressed before going home,  sick and sobbing, with treatment for side issues that have been brewing as well as zero confidence and a sense of guilt for inconveniencing the medical profession with my existence.

FINAL THOUGHTS

Okay, I am OBVIOUSLY not going to tell you all the gory details guys, but here is the main take-away from this: bring a friend. IDGAF that Covid is still raging. Well, I do. But for this, people like me NEED an advocate/interpreter/emotional support/karen/beep stopper. So find one, because it is only in retrospect that I can organize and discuss my thoughts. Also, if you want to see weird little video of me in the ER, find me on TikTok Until next time: Be Well!

Published by vrice2010

A mother, an author, a nerd. After many years working in the fields of mental health and developmental disabilities, graduating from the University of Phoenix, and pouring my talents into my local community, I decided to spread my wings and reach a wider audience.

2 thoughts on “Adventures in Autism

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

Out Of My Head!

A real life sitcom!

mytarotpsychic

Astro Tarot Reading

First Night Design

Art, Design, Theatre, Literature, History, Food, Laughter ... but mostly Art!

Ken's Devotions

Daily Christian thoughts music, poems based around God

For Health

Hello,everyone! This is a blog about fitness, healthy food, and all what we love. Here you will find advices, ideas and motivation to change your life. If you think it is impossible, you are wrong, you can do it!

Perspective on Trauma

Building Perspective on Trauma, Loss, Attachment, Familial Pain, and Moving Forward: LaDonna Remy, MSW, LICSW

Online Marketing

marketing online and making money online

Holistic Health Talks

Holistic Health and Wellness Site

Tips Hair Loss

Regrow Your Hair Naturally

Its good to be crazy Sometimes

A view from the inside of going through the minefield of the British benefit system if you are disabled and the ups and downs of coping with mental illness

Fitness First Always

You can live a fruitful life by being healthy and fit always.

MindYoga4U

A Site To Learn More About Meditation And Yoga

Alibaba Greece Ⅱ

Premium Products eShop

Healthy Cooking & Eating Tips

A Part of TopOnlineGuides.com

%d bloggers like this: